Engagement in Research 101: Introduction to Engaging Patient & Community Partners in Research

Are you interested in learning about patient and community engagement and how it can benefit your research? Excited by the idea of engaging patient, community, or other partners in your research, but unsure about where to start? Want to know more about how to engage partners at different points throughout your study?

Engaging with patient and community partners who are impacted by your research can be instrumental to the success of your study. This online training will provide an overview of engagement in research, highlighting that engagement is not "all or nothing" or "one-size-fits-all", but instead encompasses a wide variety of low touch to high touch approaches that could be right for your study.

The session will cover common myths/misconceptions about engagement in research, benefits of and key considerations for engaging patient and community partners in research, and initial steps/existing resources you can leverage to begin engaging partners in your research.

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The Engaging Patient, Community, and Other Partners in Your Research: Online Training Series is a 3-part online training series about engaging patient, community, and other partners in research. You may register for the entire series OR any single training session.

Part 1 will focus on the basics of research engagement, providing an overview of patient and community engagement and its benefits, debunking common myths and misconceptions, and providing considerations and next steps for incorporating engagement approaches into your research.

Part 2 will cover specific engagement methods, including consultative community feedback sessions, advisory boards, and working with patient and community partners as members of a research team and/or Co-Principal Investigators.

Part 3 will focus on the nuances of building and maintaining partnerships, outlining best practices for developing and strengthening mutually beneficial partnerships and discussing common partnership challenges and solutions.

This training series was developed collaboratively with patient, community, and researcher partners and is co-sponsored by the UNC Lineberger Comprehensive Cancer Center and NC TraCS Institute.

The Society for Education and the Advancement of Research in Connected Health (SEARCH) is hosting their annual virtual SEARCH 2022—National Telehealth Research Symposium November 16-18, 2022.

The 3-day conference will feature 70 speakers showcasing connected health initiatives, strategies, and partnerships, a broad scope of up-to-date telehealth research initiatives across the spectrum of healthcare delivery, research-focused educational programming, and promotion of telehealth policy and equity.

Dr. David Rhew, Global Chief Medical Officer & VP of Healthcare at Microsoft will provide the Keynote address. Speakers represent telehealth experts from HRSA, US Department of Veterans Affairs, Geisinger Health, Harvard Medical School, Children's Hospital of Philadelphia, UC Davis, UNC-Chapel Hill, Duke University, Advocate Children's Hospital, and Imagine Pediatrics to name a few.

Students only pay $75 for the full 3-days.

Dates/Times:
Nov 16 — 12 - 5:20 p.m.
Nov 17 — 12 - 6:15 p.m.
Nov 16 — 12 - 5:10 p.m.

For more information, visit searchsociety.org/search2022.

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The SPROUT-CTSA Collaborative Telehealth Research Network (PI: David McSwain, MD MPH - System Chief Medical Informatics Officer, UNC Health) is an NCATS U01 award based at UNC-Chapel Hill since April 2022. The SPROUT-CTSA collaborates with SEARCH Society to host this symposium.

Chloe Coletta (she/her) and Sharon Son (she/her) will provide a 45-minute overview of two different decision aid tools that they developed using Semblie, a free and easy-to-use web-based platform developed by researchers at UNC and RTI International.

This webinar will provide attendees with concrete examples of how Semblie can be used to design prototypes and streamline the development process.

Coletta and Son will present on the development of a shared decision making tool to better help cisgender women in NC make a decision about starting pre-exposure prophylaxis (PrEP) and a decision-making tool for breast cancer patients to inform them about COVID-19 vaccinations and alleviate vaccine hesitancy.

Accessibility: This webinar will be recorded. English language, live transcription will be enabled during the webinar. Please email This email address is being protected from spambots. You need JavaScript enabled to view it. to share additional access needs.

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This event is co-sponsored by RTI International.