IRDiRC issues call for members for four new task forces
The International Rare Diseases Research Consortium (IRDiRC) launched a Call for Members for the four new Task Forces as part of the IRDiRC Roadmap 2023.
Check out the newly approved Task Forces:
Funding Models to Support the Spectrum of Rare Disease Research and Development
The overall objective of this Task Force is to identify how different types of funders make decisions about when to fund at a given stage in a treatment's development and the factors that contribute to this process.
Framework to assess impacts associated with diagnosis, treatment, support, and community integration
The overall objective of this Task Force is to develop, operationalize, and test a comprehensive framework of holistic, multidimensional, and evolving life-long experiences of patients and families living with a rare disease.
Functional Analysis
The overall objective of this Task Force is to create a framework for the robust and effective ecosystem of functional analyses in rare diseases.
Preparing for genetic N-of-1 treatments of patients with ultra-rare mutations
The overall objective of this Task Force is to connect different N-of-1+ efforts to reduce duplication, achieve global consensus and create a roadmap towards development and implementation of N-of-1+ treatment.
How to Apply
If you are interested in taking part in any of these activities, please send a CV, biosketch, and letter of motivation (one paragraph each) to the IRDiRC Scientific Secretariat (This email address is being protected from spambots. You need JavaScript enabled to view it.) with the email title "TF Member Application-IRDiRC-[TF Name]" before February 20, 2023.
