UNC partners with NC Registry for Brain Health

The NC Registry for Brain Health is designed to increase awareness of Alzheimer's disease and related disorders and help researchers connect with a diverse group of people across the state who are eager to get involved in studies that will help improve brain health.

One of the biggest obstacles to conducting a successful clinical study is finding the right participants. Making sure the results found in a clinical investigation can be generalized to the broad population is also difficult. The registry meets both of these challenges by connecting researchers to people who are motivated to increase awareness of brain health and advance treatment options.

Registry participants represent a broad range of ages (18+), races, ethnicities, and regions of North Carolina. By bringing potential participants and researchers together, the registry helps improve study recruitment while educating people about brain health and conditions.

How to Access the Registry for Recruitment

Research partner organizations include: Duke, East Carolina, N.C. A&T, Wake Forest, and UNC-Chapel Hill. Researchers based at any these sites are eligible to apply to use the registry for an IRB-approved study.

To apply, visit duke.qualtrics.com to fill out a research request form. Additional information about the application process and study eligibility can also be found at ncbrainhealth.org.

Once the researcher's study has been approved for registry access, the registry will notify potential participants who fit that study's eligibility requirements and provide them with information on how to get involved.

About the Registry

The NC Consortium for Brain Health in Aging created the NC Registry by bringing together local brain health experts from five partnering academic universities to encourage people from across North Carolina to get involved with brain health research. Their goal is to make information accessible to all people. They strive to reach underserved and under-represented communities who are in need of services and often overlooked in Alzheimer's disease treatment studies. They do this by working together to provide the community:

• Education about Alzheimer's disease and related dementias
• Access to information about clinical trials and other enrolling research across multiple sites in North Carolina
• Current information about promoting brain health and minimizing the impact of dementia