IBD Partners announces crowd-sourced research agenda
IBD Partners is excited to announce the IBD Partners Patient Generated Research Agenda, a crowd-sourced research agenda created by patients with Inflammatory Bowel Disease (IBD).
IBD Partners is an online research network created by the Crohn's & Colitis Foundation and the University of North Carolina School of Medicine that serves as a forum for patients, providers and scientists to work together, exchange knowledge, and share data to better understand IBD with the ultimate goal of improving the health and lives of patients living with these conditions.
With support from the Patient Centered Outcomes Research Institute (PCORI), IBD Partners has developed the IBD Partners Patient Generated Research Agenda, which is an up-to-date summary of research topics that are most important to patients. The Agenda reflects the Crohn's & Colitis Foundation's firm commitment to the belief that patients should have a voice in deciding research priorities.
Inflammatory Bowel Disease
IBD includes Crohn's disease and ulcerative colitis. These are chronic, painful, medically incurable illnesses that affect as many as 1.6 million Americans, most of whom are diagnosed before age 35. These chronic, life-long conditions can be treated but not cured.
Researchers
To learn more about conducting a research study with IBD Partners, register as an IBD Partners researcher.
Inside the Agenda, you'll find:
- The top research priorities for patients (including Diet, Alternative Medicines, Medications, Comorbidities and more)
- Within each priority area, drill down into specific questions that researchers can work to answer
- Learn about funding opportunities from the Crohn's & Colitis Foundation to pursue these top research questions
For more information, contact Emily Cerciello at This email address is being protected from spambots. You need JavaScript enabled to view it..
