Rare Disease Day 2025
The NIH is postponing Rare Disease Day 2025 and will reschedule it to occur in the coming months.
FDA-NIH Rare Disease Day is scheduled for February 27–28, 2025.
This year, NCATS is co-hosting with the U.S. Food and Drug Administration (FDA) to provide a free, public event held on the NIH Main Campus at the Natcher Conference Center and virtually. Rare Disease Day aims to raise awareness about rare diseases, the people they affect and NIH and FDA collaborations that address scientific challenges and advance research for new treatments.
The goals of FDA-NIH Rare Disease Day are to:
- Demonstrate the NIH and FDA commitment to advancing research and regulatory support for people affected by rare diseases.
- Highlight NIH and FDA supported rare diseases research and the development of diagnostics and treatments.
- Initiate a mutually beneficial dialogue among the rare diseases community.
- Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
- Shine a spotlight on stories told by patients living with a rare disease, their caregivers, and their communities.
FDA-NIH Rare Disease Day seeks to bring together a broad audience including patients, patient advocates, caregivers, health care providers, researchers, trainees, students, industry representatives, and government staff.
For more details, visit ncats.nih.gov.