NC BERD Seminar: Considerations for Collecting and Analyzing Race and Ethnicity Data in Clinical Studies

Considerations for Collecting and Analyzing Race and Ethnicity Data in Clinical Studies

In this session, Jody Ciolino, PhD, will present collective work from the Northwestern University Department of Preventive Medicine’s Working Group focusing on Response to Structural Racism in Research and that of the JEDI working within the BERD-SIG. Ciolino will present experiences and lessons learned (as a collaborative biostatistician) in conducting research studies involving race and ethnicity data from the perspective of the entire research study life cycle from study design to data collection, analysis, and reporting. Ciolino will illustrate several options of setting up data dictionaries and demographic surveys for research study participants, and the aim is to spark discussion on pros and cons for different methods of data collection surrounding these data types. Ciolino will unpack the meaning and implications for interpretation when considering “adjustment,” “confounding”, and “heterogeneity of exposure effects” when it comes to the constructs of race and ethnicity. Ultimately, the audience will leave with recommendations for starting point(s) in designing, conducting, analyzing, and reporting on research studies involving race and ethnicity variables.

Speaker:
Jody Ciolino, PhD
Associate Professor, Department of Preventive Medicine (Biostatistics)
Feinberg School of Medicine, Northwestern University

This event is sponsored by the Duke Biostatistics, Epidemiology, and Research Design (BERD) Methods Core; Department of Biostatistics & Bioinformatics, Duke University; and the Duke Clinical and Translational Science Institute (CTSI). It is being cross-promoted by the North Carolina BERD Consortium (Duke University School of Medicine, University of North Carolina-Chapel Hill, and Wake Forest School of Medicine).