Carolina Engagement Week 2025 brings together Carolina faculty, staff and students with community partners to learn about and celebrate engagement and collaboration with North Carolina communities.

Register for the events you want to attend and participate in skill-building workshops, research presentations, panel discussions and more!

View the events at engagementweek.unc.edu/events-calendar.

Engagement in Research 101: Introduction to Engaging Patient & Community Partners in Research (Carolina Engagement Week)

In this training, we use engaging, interactive methods to provide an overview of engagement in research, highlighting that engagement is not "all or nothing" or "one-size-fits-all", but instead encompasses a wide variety of low touch to high touch approaches that could be right for your study. The session will cover common myths/misconceptions about engagement in research, benefits of and key considerations for engaging patient and community partners in research, and initial steps/existing resources attendees can leverage to begin engaging partners in research. We will use interactive polls, "chat storms," and breakout rooms to make the session interactive.

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This seminar is offered as part of Carolina Engagement Week and is co-sponsored by NC TraCS and the UNC Lineberger Comprehensive Cancer Program. For more information about this seminar, please visit engagementweek.unc.edu.

The NIH is postponing Rare Disease Day 2025 and will reschedule it to occur in the coming months.

FDA-NIH Rare Disease Day is scheduled for February 27–28, 2025.

This year, NCATS is co-hosting with the U.S. Food and Drug Administration (FDA) to provide a free, public event held on the NIH Main Campus at the Natcher Conference Center and virtually. Rare Disease Day aims to raise awareness about rare diseases, the people they affect and NIH and FDA collaborations that address scientific challenges and advance research for new treatments.

The goals of FDA-NIH Rare Disease Day are to:

• Demonstrate the NIH and FDA commitment to advancing research and regulatory support for people affected by rare diseases.
• Highlight NIH and FDA supported rare diseases research and the development of diagnostics and treatments.
• Initiate a mutually beneficial dialogue among the rare diseases community.
• Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
• Shine a spotlight on stories told by patients living with a rare disease, their caregivers, and their communities.

FDA-NIH Rare Disease Day seeks to bring together a broad audience including patients, patient advocates, caregivers, health care providers, researchers, trainees, students, industry representatives, and government staff. 

For more details, visit ncats.nih.gov.

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