Rare Disease Day 2024
NIH is gearing up for their biggest meeting of the year, Rare Disease Day, set for Thursday, February 29 at the NIH Main Campus. Nearly 10% of people in the United States have a rare disease. Rare diseases often are difficult to diagnose and treat. NCATS and the NIH Clinical Center are co-hosting this event to raise awareness, shine a spotlight on stories told by the rare diseases community, and highlight research and the development of diagnostics and treatments.
The planning team (which includes partners from NIH, the U.S. Food and Drug Administration, and advocacy organizations) has put together the agenda featuring sessions on timely topics such as the role of artificial intelligence in rare diseases and advances in gene therapy, stories from the rare diseases community, and panel discussions. Many of the speakers represent NCATS-supported activities, further highlighting NCATS as a home for rare diseases research. The meeting will also host in-person exhibitors, scientific posters, and an art exhibition.
This event is free and open to the public. A virtual livestream will be available for those unable to attend in person.